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I love blogging about all kinds of things ...  

Go to 'catagories' to have a look at some of my blogs on adoption, trauma, pain, disability and some of life's difficulties, where I write about finding hope from the pain and trauma, giving you encouragement and information to move on yourself and grow your own soul just a little bit more x

M.E

2/5/2015

1 Comment

 
My M.E (chronic fatigue -Myalgic Encephalomyelitis) seems to have really caught up with me now.
The further I move away from it mentally, the nearer it sneaks up behind me physically.

I am doing so much mentally and having great fun thinking up new idea's and seeing old idea's come to fruition...but all the time, I cannot shake off this exhaustion. I look back and realise how little I can do compared with a year ago....and this week I looked back to just the last couple of months and see how far downhill I have gone.

I took delivery of a powered wheelchair last week and this week was assessed as needing a wet room and a stair lift..... I am only 50! 

It is strange. I am so pleased to have the independence that the mobility wheelchair will give me BUT it defines me now as 'disabled' and I feel really sad, like I have gone backwards.

All I can do to stay sane, is be positive. The joy I felt when being outside in the sunshine this week, in my wheelchair, was wonderful...it really did fill my soul. That pleasure will be worth putting up with all the negatives. I have been so isolated for so long, stuck indoors because the effort of getting ready to go out was too much, let alone the actual trip out! 

I saw last summer mainly through my bedroom window. This year I plan to take the dog for a walk with my husband, visit the beach and stroll (or rather ride) along the quay. I plan to start living again.

You coming too? You will recognise me when you see me.......I'll be gliding along, the gal with a smile on her face, wearing red button boots!!!!! 

Picture
1 Comment
Paula
2/5/2015 09:08:58 am

Good to hear you sounding so positive x

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